Living Well with Lewy: Education, Connection & Empowerment is a one-day patient and family conference co-hosted by the Lewy Body Dementia Association (LBDA), Struthers Parkinson's Center and Mayo Clinic – Rochester at the Minneapolis Marriott West on Tuesday, 28 July 2026.
With presentations from leading clinicians, researchers and subject-matter experts, plus a keynote address by Angela Lunde, MA (Mayo Clinic), this community conference advances the understanding of Lewy Body Dementia (LBD) symptoms and provides practical approaches to navigate cognitive, emotional and visual changes, prepare for palliative care, and support the needs of LBD care partners.
Format: In-person · 7h 30m · Free to attend (donations welcomed)
Audience: People living with LBD, care partners, families, allied-health professionals
Registration: 07:30 · Programming: 08:00–15:30 · Lunch & snacks provided · Quiet room available
Agenda (highlights)
- 08:15 – Naming It Matters: Education, Awareness & Early Diagnosis in LBD — Julia Wood, OTR/L
- 09:00 – Key Insights in Lewy Body Dementia Research — Keith Fargo, PhD (LBDA)
- 10:15 – It Takes a Team: Supporting the Person & the Caregiver in LBD — Anne Adix DPT, Emily Furseth LICSW, Kevin Webb-Kay MD
- Afternoon sessions on cognition, vision, palliative planning, music therapy and care-partner resilience
- Keynote: Angela Lunde, MA — Living Well with Lewy
- Closing improv reflection by Tane Danger
Why attend
- Hear directly from LBDA, Mayo Clinic and Struthers Parkinson's Center experts
- Practical strategies for cognitive, behavioural and visual symptoms
- Care-partner support, community connection and palliative planning
- Free admission, lunch included, quiet space available
